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BR 136 - J. Adams

     AN ACT establishing the Kentucky Rare Disease Advisory Council and making an appropriation therefor.
     Create new sections of KRS Chapter 211 to establish the Kentucky Rare Disease Advisory Council; list members to be appointed by the Governor; state the duties of the council; require a report of council activities; create a rare disease trust fund to be administered by the Cabinet for Health and Family Services to finance the operation of the council and support rare disease research and treatment; require a report on expenditures from the fund; require the council to cease to exist on December 1, 2028, unless otherwise reestablished by the General Assembly.

     Dec 01, 2017 - Prefiled by the sponsor(s).