05RS SB24

SB24

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SB 24 (BR 318) - J. Denton, D. Boswell, T. Buford, D. Harper Angel, A. Kerr, D. Mongiardo, J. Pendleton, J. Rhoads, R. Roeding, E. Scorsone, E. Tori, J. Turner

     AN ACT relating to newborn screening.
     Amend KRS 214.155 to permit the cabinet to establish separate fees for expanded newborn screening, require additional newborn screening tests for heritable disorders upon funding and acquisition of equipment and personnel, require cabinet to enter into agreements with medical schools and laboratories to conduct screening, and require cabinet to apply for any federal funds or grants to expand or improve newborn screening programs.

SB 24 - AMENDMENTS


     SCS - Amend KRS 214.155 to require the Cabinet for Health Services to operate a newborn screening program that includes screening tests and definitive diagnostic evaluations for positive tests, and require administrative regulations to include the manner of testing, recording, and reporting of screening tests, and to establish fees for the screening program; specify the conditions included in a screening test; require information to be provided to a parent about the screening tests and require an institution or health care provider to arrange for appropriate follow-up; require information about tests not specified to be provided to a parent and specify the parent is responsible for costs associated with additional screening tests; define qualified laboratory; require the cabinet to contract with qualified laboratory if the cabinet is unable to screen for the specified conditions; permit the cabinet to contract with qualified laboratories for conditions not specified; specify that cabinet contracts for unspecified conditions does not preclude other institutions or providers from utilizing other qualified laboratories for tests for unspecified conditions; permit the cabinet to solicit and accept private funds to expand, improve or evaluate the newborn screening program; provide a short title to name this the James William Lazzaro Newborn Screening Act; EMERGENCY.

     HCS - Retain original provisions except cite as the James William Lazzaro and Madison Leigh Heflin Newborn Screening Act.

     Jan 4-introduced in Senate
     Jan 7-to Health and Welfare (S)
     Feb 7-reported favorably, 1st reading, to Calendar with Committee Substitute
     Feb 8-2nd reading, to Rules; posted for passage in the Regular Orders of the Day for Wednesday, February 9, 2005
     Feb 9-3rd reading, passed 36-0 with Committee Substitute
     Feb 10-received in House
     Feb 11-to Health and Welfare (H)
     Feb 14-posted in committee
     Feb 24-reported favorably, 1st reading, to Calendar with Committee Substitute
     Feb 25-2nd reading, to Rules; posted for passage in the Regular Orders of the Day for Monday, February 28, 2005
     Mar 1-3rd reading, passed 97-0 with Committee Substitute; received in Senate
     Mar 3-posted for passage for concurrence in House Committee Substitute; Senate concurred in House Committee Substitute; passed 36-0
     Mar 4-enrolled, signed by President of the Senate
     Mar 8-enrolled, signed by Speaker of the House; delivered to Governor
     Mar 11-signed by Governor (Acts ch. 66)


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